Sjogren’s Syndrome is a lesser-known autoimmune condition, but one that affects millions of people worldwide — especially women over the age of 40. Despite its growing prevalence, it remains misunderstood, and many myths surround it. Misinformation can delay diagnosis and impact treatment. In this blog, we’ll bust the common myths and highlight the real facts about Sjogren’s Syndrome to help patients and caregivers make informed decisions.
Myth 1: Sjogren’s Syndrome Only Causes Dry Eyes and Dry Mouth
Fact: It Affects the Whole Body
Dry eyes and dry mouth are the most visible and early signs, but Sjogren’s Syndrome is a systemic disease. It can affect the joints, lungs, kidneys, nerves, digestive system, and more. Many patients experience chronic fatigue, joint pain, and even organ complications. That’s why it’s important not to ignore other symptoms that seem unrelated to dryness
Myth 2: Only Older Women Get Sjogren’s Syndrome
Fact: It Can Affect Anyone – Men and Young People Too
While it’s true that women over 40 are the most commonly diagnosed, Sjogren’s can occur at any age, and even men and children can be affected. Unfortunately, men are often misdiagnosed or diagnosed late because of the belief that this is a “women’s disease.”
Myth 3: Sjogren’s Syndrome is Rare
Fact: It’s Underdiagnosed, Not Rare
Sjogren’s Syndrome is one of the most common autoimmune diseases, but it is often underdiagnosed due to vague symptoms and low awareness. Experts estimate that up to 4 million people in the U.S. alone may be living with it. Early detection and diagnosis are crucial for proper management.
Myth 4: It’s Just a Mild Inconvenience
Fact: It Can Significantly Impact Quality of Life
Many people think of dry mouth or eyes as minor annoyances. But for Sjögren’s patients, symptoms can be severe, painful, and debilitating. Chronic fatigue, joint stiffness, difficulty swallowing, tooth decay, and eye infections can make daily activities extremely difficult. It’s a chronic autoimmune condition that requires long-term care and attention.
Myth 5: There’s a Cure for Sjogren’s Syndrome
Fact: There’s No Cure, But It Can Be Managed
Unfortunately, there is no cure for Sjögren’s Syndrome at this time. However, with the help of a rheumatologist, patients can manage their symptoms effectively. Treatments may include artificial tears, saliva substitutes, anti-inflammatory medications, immunosuppressants, and lifestyle changes.
Myth 6: Sjogren’s Is the Same for Everyone
Fact: It Varies Greatly Between Individuals
Every patient experiences Sjogren’s Syndrome differently. Some may have mild symptoms limited to dryness, while others may struggle with organ involvement or neurological complications. Personalized treatment plans are essential, and regular follow-ups with a specialist help adjust care as needed.
Myth 7: If Blood Tests Are Negative, You Don’t Have Sjogren’s
Fact: Diagnosis Can Still Be Made Without Antibodies
While antibodies like Anti-SSA (Ro) and Anti-SSB (La) are commonly associated with Sjogren’s, not all patients test positive. Diagnosis is based on a combination of factors: symptoms, eye tests, saliva gland biopsy, and lab results. A negative blood test does not rule out the condition.
Myth 8: You Should Avoid Exercise If You Have Sjogren’s
Fact: Gentle Exercise Can Actually Help
Many patients fear that exercise may worsen their fatigue or joint pain. However, low-impact physical activity like yoga, walking, and swimming can reduce stiffness, improve energy levels, and support mental health. It’s important to pace yourself and consult your doctor for a personalized plan.
Final Thoughts
Sjogren’s Syndrome is more than just dryness—it’s a complex, often misunderstood autoimmune disease that requires awareness and proactive management. By separating myths from facts, we can empower patients, reduce delays in diagnosis, and improve quality of life.
If you or someone you know is experiencing chronic dryness, fatigue, or joint pain, don’t ignore it. Consult a rheumatologist for proper evaluation and care.
